Survival Caregiver's Network

The Caregiver Space is free to use and ad-free but takes hundreds of hours a month to maintain, design, research and write, and thousands of dollars to sustain. If you have found any value in this community, please consider supporting The Caregiver Space with a one time OR recurring monthly donation of your choosing, between the cost of a cup of coffee and a delicious dinner!

The Caregiver Space

An online community of caregivers who understand.

Quick Links: Adrienne Gruberg, Founder - Meet Our Staff - Board of Directors - Friends & Partners - Spread the Word

The Caregiver Space is a non-profit organization committed to ensuring caregivers feel seen, heard and most of all supported. We give caregivers an online space to find comfort, relief and to connect with other caregivers who understand what you're going through.

Our mission is to provide emotional and logistical support tools to family and professional caregivers, and to help manage and cope with the consequences of ongoing caregiving: chronic stress, fatigue, loneliness, guilt, anger and frustration.

We seek to encourage our community to engage in healthy expression and self-care practices through:

  • open and facilitated discussions,
  • private messaging,
  • personal blogs
  • an array of expert health articles,
  • a free and readily accessible online portal

We educate our community through a host of expert content on topics covering mental health, physical fitness, bereavement, relaxation and sleep aid. We aim to affect and connect our nation’s caregivers, creating healthier and more sustainable practices for these pivotal players in our nation’s healthcare system.

Our vision is to make caregiving the Next Big Cause.


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About the Founder, Adrienne Gruberg

Born in New York City in 1948, Adrienne Gruberg refers to herself as "one of the millions of baby-boomers now in the middle of the caregiving crisis."

Shortly after graduating from Boston University School of Fine Arts, Adrienne spent time in Liberia, West Africa, helping to set up a study for the New York Blood Center to discover the serum for Hepatitis B. She has worked at NBC Network in the business affairs department of the programming division, and later founded Adrienne Youngstein & Associates - an award winning graphic design, marketing, advertising and branding company in New York City. With the encouragement and coaching of her future husband, Steve Gruberg, she became a contestant on the popular TV game show "$20,000 Pyramid" and won the Grand Prize.

Adrienne became a constant caregiver to both her husband, diagnosed with lung cancer in 2005, and his mother, who at the age of ninety in 2007, was diagnosed with lymphoma and went to live with her son and daughter-in-law in New York City. As a result of this crisis, she is the proud Founder and President of The Caregiver Space.

At present, Adrienne is also Owner and President of Cable Access Network in New York City, producers of both local cable shows and content for streaming video outlets. She also owns a television studio in midtown Manhattan, TV Studio, Inc., where she will be producing content for CGS—the "spin-off" video channel of the new website.

"This site grew out of a personal need to connect with other caregivers and be part of a community where experiences and feelings could be shared and support could always be gotten. Understanding there are so many causes that make someone a caregiver made this site evolve into a place where a caregiver for any reason, could come and have a place to air their feelings – keeping them in is both exhausting and counter- productive. There are many services available to caregivers of patients with specific needs, but our concern is exclusively to comfort and help the caregiver." - Adrienne Gruberg

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Meet Our Staff

Alexandra Axel, Media Director

Alexandra Axel is the media director for The Caregiver Space. As a New York native, Allie grew up people-watching and story-collecting, eventually pursuing her undergraduate degree from The College of New Jersey in sociology and creative writing. At The Caregiver Space, she uses social media, graphic design, blogging, and program development to brand and grow an online community composed of, and focused on, caregivers. From the seedlings of an idea to the thriving community that it is today, Allie has been there from the beginning and looks forward to participating in the evolution of The Caregiver Space.

Additional to her work at The Caregiver Space, Allie enjoys writing poetry and short fiction, devouring books, biking, crafting, urban agriculture and imperfectly cooking. She currently resides in Brooklyn with her partner, Audrey, and their pup, Hen.

Jonah Okun, Development Director

A recent transplant from his birthplace in Amherst, Massachusetts, Jonah now spends his time discovering the wonders of the New York metropolis. After spending seven years as a professional chef, baker and restaurant manager, Jonah brings his hunger for engaging work to The Caregiver Space as development director. He holds a degree in Comparative Digital Communications and Happiness Studies from the University of Massachusetts, Amherst. His intrigue in promoting well-being through new digital platforms pairs perfectly with the organizations goal of making online support for caregivers a reality.

Jonah has also studied at Kripalu Yoga Center where he completed a certificate program in integrated leadership and effective communication. A passionate pocket billiards player and poet, he now happily resides in Brooklyn with his partner Kate.

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Meet Our Board of Directors

Leslie Novick Frank, Chief Executive Officer/Vice President

Ms. Frank is a volunteer member on the board of directors. She holds a BFA from Washington University and an MBA from Pace University. Ms. Frank is a founder and partner of Frank & Stern, Inc., a marketing and merchandising development firm. She specializes in developing sustainable business solutions that drive growth in the multi-platform electronic retail sector.

Fred B. Tarter, Chief Financial Officer/Vice President

Mr. Tarter is a volunteer member on the board of directors. Mr. Tarter has been in business for over 40 years having built and sold many successful companies in the financial services industry, healthcare product development and media related companies. Mr. Tarter has incredible business knack for identifying key growth solutions for small businesses. His non-profit experience includes serving as the Chairman of the Freedom Broadcasting Foundation for ten years as well as serving on the board of the Scholar Rescue Fund.

Adrienne Gruberg, Chief Operating Officer/President

Ms. Gruberg is a volunteer member on the board of directors. She holds a BFA from Boston University. Ms. Gruberg is a former caregiver and the founder of The Caregiver Space, Inc. She founded AYA Creative, an award winning graphic design, marketing and advertising company. Her design training has helped shape the website and her personal and professional experience continues to inform and influence the caregiver centric support experience she has created at The Caregiver Space, Inc.

Wayne Greenwald, Officer

Mr. Greenwald is a volunteer member on the board of directors. He holds a B.A. from SUNY New Paltz and a law degree from the Benjamin N. Cardozo School of Law at Yeshiva University. Mr. Greenwald is a practicing debtor-creditor law attorney.

Edward L. Siegel, Officer

Mr. Siegel is a volunteer member on the board of directors. Mr. Siegel holds a Bachelor’s and Master’s degree in Business Administration from Baruch College and has been a New York State certified public accountant since 1962. He is also a longstanding member of the American Institute of CPAs. He is co-founder and principal owner of Siegel and Uscott, an accounting firm for over 20 years.

Tui Yu Chan, Treasurer

Ms. Chan is a volunteer member on the board of directors. She holds a Bachelor’s in Business Administration from Baruch College and has been a certified New York State public accountant since 1980. Ms. Chan is sensitive to the needs of the caregiving community after serving as a caregiver for her mother during the last four years of her life.

Sheenah Hankin, Officer

Dr. Hankin is a volunteer member on the board of directors. She holds a graduate diploma in counseling from Aston University and a Ph.D., from International University. Dr. Hankin was worked with dozens of caregivers throughout her career as a staunch advocate for caregiver self-care. She is the author of “Complete Confidence.”

Alexandra Axel, Secretary

Ms. Axel is a volunteer member on the board of directors. She holds a Bachelor’s Degree in Sociology from The College of New Jersey. Ms. Axel has completed subsequent study in digital media and design and excels at creating relevant and shareable online content which she produces daily in her paid capacity as digital media director for The Caregiver Space, Inc. Her expertise in the digital domain will help effectively direct the board’s work into the online sphere.

Jonah Okun, Officer

Mr. Okun is a volunteer member on the board of directors. He holds a Bachelor’s Degree in Comparative Digital Communications and Happiness Studies from The University of Massachusetts, Amherst. An adept and skillful communicator in both online and offline channels, Mr. Okun is a paid employee, working as the Development Director at The Caregiver Space, Inc.

Bonnie Auletta, Officer

Ms. Auletta is a volunteer member on the board of directors. She holds degrees from The American College of Financial Services and the Fashion Institute of Technology. Ms. Auletta’s experience working in the long term care industry for the past ten years will make her an invaluable member on the board of directors. She holds a Health and Life license and is a certified Long Term Care planner.

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Friends and Partners

The Caregiver Space is a proud sustaining member of The National Alliance for Caregiving. Established in 1996, the N.A.C. is a non-profit coalition of national organizations focusing on issues of family caregiving. Alliance members include grassroots organizations, professional associations, service organizations, disease-specific organizations, a government agency, and corporations.
CGS is proud to announce that we have partnered with Exude Fitness, has appointed its founder & CEO Edward Jackowski, Ph.D. as CGS’s lifestyle expert. Edward is considered one of the foremost leaders in the motivational and fitness fields in the country today and is the author of seven books. Dr. Jackowski has extensive knowledge and experience working on improving the quality of life, tailored to an individual’s unique constraints (including his 90 year-old mom). He was the first ever fitness expert and columnist for AARP’s Modern Maturity magazine. For many years, Edward was the fitness expert for The American Diabetes Association (ADA) in NYC and for years he was their keynote presenter at their annual convention. He has also worked with numerous schools, hospitals, elderly homes and other healthcare initiatives.
Dialysis of Healing and The Caregiver Space have teamed up to create Sessions with Jean, a web series for caregivers in need of expert advice on grief and healing. Through Dialysis of Healing, Jean Wolfe Powers MS/LMFT offer free services to help caregivers and carees through the spectrum of life through individual phone therapy sessions and a monthly phone support group.
 A friend to The Caregiver Space, Lotsa Helping Hands provides the direct in-person support caregivers often desperately need. We are happy to refer caregivers looking for help or those looking to help caregivers to Lotsa Helping Hands. When people rally to help someone in their family or Community, Lotsa makes it easy for each person to know what to do and when.
 

Utilizing a patent pending process called Altus Oscillation™ for enhancing carefully selected music, Alzheimer's Music Connect have developed a non-pharmaceutical product capable of comforting Patients while providing valuable relief for their Caregivers. They will gererously donate $10 to The Caregiver Space for every person who uses the coupon code "TCS" at check out.

 Meals to Heal provides home delivery of fresh, customized meals designed to meet the needs and help manage the side effects experienced by cancer patients. Meals to Heal's oncology registered dietitians are also available for telephonic nutritional counseling and health coaching sessions which can help patients learn strategies for managing side effects and building healthy practices during cancer treatment.   Meals to Heal also provides a great deal of safe, evidence based information and resources on its website.  Gift Certificates are available.
Yosaif August is a professional life coach, with a strong focus on the caregiving experience. He provides wisdom, practical solutions and practices as well as self-monitoring tools to help generous and committed caregivers.

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Spread the word

Get a copy of our digital flyer to share with a caregiver support group, friend, or family member. 

Click thumbnail to enlarge.

Tweet about our caregiver community!

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