I have a baby daughter with a rare condition that has taken us on a terrifying rollercoaster ride in her young life. As a result, her skin is very red and sensitive and she doesn’t look like other babies. I can’t begin to tell you how often people will look at her and ask what’s wrong. But it’s the way they say it, like she’s a dog that just shit on a rug and not a tiny baby who needs our love. Somehow the hushed tones and fake concern feels just as bad. I try to ignore it, but it really gets to me. I think my biggest worry is what this will do to her. It has me so worked up, what will this treatment do to a little girl? The world is such a cruel place.