What’s left behind

The caregiving for my Uncle fell upon my mother. He did not want the family to provide hands-on care, so he made sure to have a live-in home health aide. The logistical and legal aspects of care and his estate were still significant. After his passing, I went with my...

When the clock won’t stop

My mother won't die. I know, it's awful to say. I don't particularly want her to die, but it's inevitable. She's dying. She's been dying. I can't change that. The problem is that she won't let go of the dying part and move into the next phase. Dying is an awful, awful...

I don’t want to be my husband’s caregiver

Yes, we both said our vows. But how many of us break them? Most of us, at one point or another. Would he do this if our roles were reversed? Absolutely not. He'd be out of here in a minute. He was cheating on me when his spine was crushed in a car accident. I have no...

This is what caregivers want in 2017

The lives of caregivers rarely rely on the calendar, they go on the schedule of the person we're caring for! Still, the beginning of a new year is a time for reflection. Here's what our community is planning on doing this year...and what we're hoping others will do to...

Should we buck the bucket list trend?

  A new year means a new emphasis on resolutions, life goals, and marking things off that bucket list. As caregivers, we may find ourselves abandoning our own dreams to help an ill relative tackle their own bucket list. Is there a better way to achieve...

New Years resolutions for unglamorous lives

Right after the accident, my life was sort of glamorous in a weird, morbid way. Everyone stopped what they were doing to rally around and pitch in. We're young, none of our friends had experienced this before, and we were lucky enough to have friends who went all out....

Just be

OMG! Another year has gone by which, in retrospect, feels like it occurred in the blink of an eye, and what’s done is done. The coming year holds many mysteries, trepidations, adventures, changes and losses, but many opportunities as well. So, I’m suggesting that we...

Crossing the bridge

When you are a caregiver, you are the guide for your loved one as they cross the bridge toward death. The world, with colors and noise swirling around, keeps tugging and pulling on you, wanting you to come back, but the labored last few breathes of your loved one...

The saga of young carers

My name is Patrice Marie White, I'm from the UK. I am a former fulltime caregiver for my late mother. The other day, I was guided to draw something in a childlike way that illustrates and depicts a scenario faced, both as an adult caregiver and as a child caregiver....

Promises to myself this Christmas

Every Christmas season I work myself up into a panic. As a busy caregiver and a mom, Christmas just feels like a lot of work. I'm determined to not stress out this holiday. Maybe I'll even enjoy myself. Here are the promises I'm making to myself this Christmas: I am...

Dreading the holidays

I remember when I loved Christmas and New Years. Before my mother got sick. We try to pretend we're a normal family at Christmas still. It doesn't work. Christmas planning used to be fun, if a little stressful. What new recipes should we try? What old favorites do we...

Go ahead and vent

The letter below is from a caregiver ready to give up. I am 67 years old, sleeping once again in the house I was raised in. I have given 6 years so far, caring for my 92-year old mother who has Alzheimer's. My husband, children and grandchild live in another state,...

Mind that Mouth

A visit to the dentist is sometimes met with dread, but our mouths tell us more about our health than we may realize. I gained insight into the importance of oral health in my years as a caregiver for my parents. Our family always had lousy teeth; some of my earliest...

Life with Li–Fraumeni syndrome

Sue Armstrong meets Pan Pantziarka, whose son George had Li–Fraumeni syndrome and lived with cancer from early childhood. One of the bleakest moments in Pan Pantziarka’s long struggle with Li–Fraumeni syndrome was when doctors at Great Ormond Street Hospital in London...

The accidental caregiver

On December 12, 2001 an event unfolded into a life-changing experience for my family. My brother-in-law, Rodney, was in a car accident that on the surface appeared to be an urban collision. In my mind, it could not have rendered the life threatening catastrophic...

Breaking bad news

How do you tell someone that they’re seriously ill, or even dying? Chrissie Giles explores how doctors learn and how they deal with the stress and trauma, for both their patients and themselves. Listen to or download an audiobook of this story...

Take a New Look at the Yellow Crayon

Before he leaves for his outing, my father beckons me out onto the ramshackle porch of the rental cottage. He solemnly hands me a tablet of thick white artist’s paper and a pristine box of 24 crayons.  “I want you to get your mother interested in art again,” he says....

The man with the golden blood

Meet the donors, patients, doctors and scientists involved in the complex global network of rare – and very rare – blood. Listen to or download an audiobook of this story on SoundCloud and iTunes. His doctor drove him over the border. It was quicker that way: if the...

Can caregiving lead to PTSD?

Most people associate PTSD with veterans of war, but you don't have to be a soldier to experience this condition. The NIMH defines PTSD as 'a disorder that develops in some people who have experienced a shocking, scary, or dangerous event.' When people experience a...

My grandmother’s battle with Alzheimer’s

Over the past few years, my family has been involved with my grandmother’s battle with Alzheimer’s. I painted this portrait as a representation of her decline. Nancy Jane, 2015 Oil on Canvas 16 x 20 in. Madison Luetge graduated from Texas A&M University-Commerce...

Unexpected gifts

The following is an excerpt from Unexpected Gifts: My Journey with My Father's Dementia. My dad, Reuben Soldinger, was ill for nearly two years. His mind was confused about many things. Sometimes he thought he was at a hotel, not in a nursing home. Often he didn’t...

The Agony and the…..Agony of TBI

A traumatic brain injury is a game changer in life. We are now seeing a lot more attention devoted to brain injuries in the news and in health care due to the high profile athletes who are suffering from traumatic brain injuries, and for sake of readability referred...

Faces of Care: Martine Côté

Thérèse and Pierrot laughed together until his last day. It was their way to take care of each other, laughing and smiling. More than 30 years of Love. Martine Côté is a photographer in Quebec City. You can see more of Martine's work on her website, Facebook, or...

Ordinary Caregiving Days Add Up to Life

This is my 19th year of caregiving and I can hardly believe it. After a series of mini strokes my mother developed memory disease. I was her family caregiver for nine years. In 2007 my twin grandchildren’s parents died from the injuries they received in separate car...

What I learned about aging in place

  Making modifications to the home can help your loved ones age in place, a goal of an increasing amount of families. There are plenty of resources online that offer checklists and other pieces of advice that cover the most common modifications. With hindsight...

Faces of Care

We want to share your story! Every caregiver is unique -- we want to show the world what caregiving means. Send us your favorite photo of yourself, a selfie, or a photo that shows what caregiving means to you and we'll share it with the world....

Saying Goodbye, The Right Way

Ediccia wanted to be remembered as someone who didn’t give up. Chuck said some of his favorite times were playing baseball with his brothers. Joe said he was the luckiest man in the world. Abel summed it up this way: “You have a one-way ticket. Don’t waste it!” They...

Raising my HIV family

When one Romanian doctor became ‘father’ to 16 HIV-positive orphans in 1999, many thought there was no hope for them – or for the thousands of other children infected. What followed was something of a miracle. Geta Roman tells their story. Dr Paul Marinescu has chosen...

Dignity: A song about ALZ

https://www.youtube.com/watch?v=ViNUzFFeMVc Having lost a grandfather to Alzheimer's years ago and witnessing my grandmother's role as a caregiver become more and more necessary during his progression, I was inspired to write a piece from the viewpoint of a caregiver....

How do we know our parents are failing?

Nothing is more comforting than to know your parents are strong, vital, and running their lives on their own, living out their retirement dreams so you can live yours. It's easy to believe they are okay because that's what we want to believe. But people beginning to...

We’re Partnering With The Mighty!

We're thrilled to announce a new partnership that will bring The Caregiver Space's resources in front of The Mighty's wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site, allowing us to get many more...

Have Courage and Be Kind

“Have courage and be kind” is one of those wonderfully memorable movie quotes to live by that is so simple yet so profound.  In the 2015 action version of the Disney film, Cinderella receives this advice from her dying mother. [Tweet "Have courage and be kind"] My...

TBI: Traumatic Brain Injury, the fallout

If someone had told me that I would be dealing with the effects of a car accident years after it occurred, I would have immediately assumed it would be due to the obvious damage to a person that results in broken bones and wheelchairs. I would never have thought of...

Lifting the arms of a caregiver

Exodus 17:8-16 There is an Old Testament story that tells us about the battle between Joshua and Amalek. The Amalekites had come up against the Israelites at Rephidim (which translated means resting place). Exodus 17 tells us that Israel’s caregiver, Moses, said to...

Coping through caring

The Kitchen Widow sits down with Audra Wilford, founder of the MaxLove Project. Together they talk about what it takes for young families to thrive in the face of illness.      

Frustrated

I am a single 37 year old female with four beautiful children who is taking care of my  92 year old Grandfather who has Alzheimer's, Dementia, and Stage 4 Bladder Cancer. I also just finished taking care of my Grandmother, which passed away last year from the same...

Embracing creativity as a caregiver

The last thing you may feel like doing when you are actively caregiving is engaging that creative spark. Heck, if you were creative before caregiving, you may believe that your creative fire has been extinguished forever. Be open to opportunities for expression during...

Three lessons from a simple story

Exodus 17:8-16 There is an Old Testament story that tells us about the battle between Joshua and Amalek. The Amalekites had come up against the Israelites at Rephidim (which translated means resting place). Exodus 17 tells us that Israel’s caregiver, Moses, said to...

Been There, Done That!

I was asked while attending church last Sunday why I had such a strong commitment to caring for those who had disabilities. The person asking the question was not being difficult, but really wanted to know why I had such a strong empathy for the disabled and if it had...