Adrienne Gruberg

  • Adrienne Gruberg posted a new activity comment 2 months, 3 weeks ago

    Mary (Mary Rose?),
    Welcome to The Caregiver Space.
    It sounds like you’ve got the situation well in hand. You’re so fortunate to have a husband helping you out as he does. Kudos to him!
    How does your mother feel about dialysis? Once you have more real information, I think you’ll be less stressed. It’ll become routine. Just another…[Read more]

  • Since we posted the video last week asking you to call your government representatives, many of you wanted to know how to contact them and what to say. We can give you the how and just an outline of what, but the […]

  • Patricia –

    Absolutely. The Caregiver Space is here for caregivers of everything and anything that is a health issue – whether it is mental health, childhood illnesses, Alzheimer’s, cancer, diabetes, heart disease or Pulmonary Fibrosis. Welcome. The caregiver’s challenges have a great deal in common no matter the cause. You may well have issues…[Read more]

  • I founded The Caregiver Space when my husband passed away. Getting involved in a conversation on spousal caregiving was one of the most important tools a husband or wife has as one cares. Here’s my story, in brief.

    When my husband was diagnosed with Stage 1A Lung Cancer in 2005. We were told surgery was necessary and although his cancer would go…[Read more]

  • I founded The Caregiver Space when my husband passed away. Getting involved in a conversation on spousal caregiving was one of the most important tools a husband or wife has as one cares. Here’s my story, in brief.

    When my husband was diagnosed with Stage 1A Lung Cancer in 2005. We were told surgery was necessary and although his cancer would go…[Read more]

  • OMG! Another year has gone by which, in retrospect, feels like it occurred in the blink of an eye, and what’s done is done. The coming year holds many mysteries, trepidations, adventures, changes and losses, but m […]

  • We want to share your story!
    Every caregiver is unique — we want to show the world what caregiving means. Send us your favorite photo of yourself, a selfie, or a photo that shows what caregiving means to you […]

  • I have a good life. I’m lucky in all aspects except for the fact that I lost my husband. The only person I would trade places with is OPRAH, and that’s because of her power and reach and the ability she has to do good on a grand scale. The access to media OPRAH has, and her innate sense of fairness and goodness is a combination I’d be happy to use…[Read more]

  • Hi Alicia –

    My goodness, you and your husband Jerry have been through the wringer. My experience was with lung cancer. In and out of remission; in and out of surgery and so many different treatments. Steve died in 2011 and it was caring for him that inspired me to found this site.

    Funny…we would have been married 11 years on September 12th.…[Read more]

  • Adrienne Gruberg posted a new activity comment 8 months, 2 weeks ago

    Diane – What you’re going through isn’t easy, but there are a lot of us who have been just where you are. There is no reason for you not to be angry that you’re in this situation—it’s natural. You’ve had to alter your lifestyle to accommodate your mother. Just don’t feel guilty that you’re angry.

    Your friend may be angry about having to cut y…[Read more]

    • I can relate. My mom has a plethora of health issues. The most dominant is her “multifactorial” memory loss. We live together, I have no siblings, we moved 2 hours from her hometown in order for me to be able to work AND take care of her series of health issues. (Think “whack-a-mole”.) Things were going okay and I was up to my knees in…[Read more]

  • Adrienne Gruberg replied to the topic Falling in the forum Vent space 9 months ago

    Max – Not too many of us are good with airing their laundry. My husband would listen to calls with my friends to make sure he approved of what I was saying. The fact that they were concerned didn’t override his need for privacy to a paranoid degree.

    You haven’t said what your wife’s condition is, but you allude to the fact that you knew this…[Read more]

  • Lacey –

    Welcome. For a young woman, you’ve certainly done your fair share of caregiving, but it sounds like this is the closest it’s ever gotten to home.

    It also sounds like there must be someone in your contacts who would know where you should be looking for care for your mom.

    You bring a lot of experience to your situation. Check out our…[Read more]

  • Laurie –

    I can’t begin to imagine what you’re going through. I have no children except the strays that I’ve taken under my wing over the years. I’m a natural nurturer, that’s all. But parenting and all it involves, good and bad, is something I haven’t experienced.

    I do have a cousin, now 84 years old, who has a daughter who’s mentally challenged…[Read more]

  • Adrienne Gruberg replied to the topic Falling in the forum Vent space 9 months ago

    Hi Max –

    I’m sorry your wife isn’t progressing well. You say it’s starting to take its toll – sounds like that means on both of you. And your family. They can write here too. We have a young caregiver’s forum. We may even have a young people’s chat – it’s all online.

    This is meant to be a place to vent. I’m very glad you’re doing just that.…[Read more]

  • I worked very hard to establish good working relationships with Steve’s doctors and nurses as well as my own. Earning their respect was key to having an honest dialogue with them regarding Steve’s treatments, surgeries, medication, home care, mental state——you name it. These relationships were serious business, and I treated them as such. I dre…[Read more]

  • Gina –

    Although my husband, Steve, was never on the medication you’re asking about, we have husbands with lung cancer in common. It was his illness and loss that prompted me to found this site.

    I’m delighted to hear that you’re taking care of yourself——I’m sure you know that many caregivers fail to care for themselves while the care for the…[Read more]

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