moved home while he recovers
am always going to be there for her
go to all of their doctor appointments
don’t know how to support him
try to be there for her any way I can
take her to appointments
cook healthy meals for us
do all the housework and childcare
help him every day
moved in with him to help
dropped out of school to be with her
wonder if we’ll ever have kids
take care of him on Tuesdays
she stays with me when she’s too sick for school
know she’ll move in with me one day
take care of his finances
support us both while we figure things out
run her errands and mow her lawn
visit her three times a week
take care of each other
moved across the country to take care of her
stayed with her for six months after her leg was amputated
help her manage her treatment plan and support her
have managed his care for 14 years
do everything he used to do around the house
use all of my vacation to be with him
moved next door so I can watch her kids
gave up my career to take care of her
feel torn about my role in his care
worry how I’ll pay for her care
help her when her mom can’t
One of the things I hear all the time is that people's friends and family just don't understand what they're going through as a caregiver. I also am told all the time how "only another caregiver can understand." The sad fact is, a lot of other caregivers don't...
As a health care provider and a person who has taken care of not one but two partners with cancer who passed away from their illness, the movie Patch Adams scares me. I don't want to run into that guy and his big huge clown nose and his clown shoes and the bike horn...
Supplemental Security Income — a cash assistance program whose beneficiaries also get Medicaid coverage — sharply limits the income and assets of those who receive it. Today, over eight million people receive S.S.I. benefits (not to be confused with Social Security...
On the freezer door in my kitchen, there’s an index card held in place with a bright red magnet. In bold, black letters, I’ve written an important reminder on it: “Make a ‘When I Die’ file.” I should point out that I’m not terminally ill, just highly organized. I was...
July 26, 2020, commemorates the 30th anniversary of the Americans with Disabilities Act, arguably the most broad-reaching civil rights legislation since the Civil Rights Act of 1964. For decades before the ADA, people with disabilities — all 61 million of us, who...
Deborah Danner was a 66-year-old Black woman with schizophrenia. In 2016, an NYPD officer shot her in her Bronx apartment while responding to her neighbor’s call that she had been behaving erratically. She did not survive. Chillingly, Danner wrote an essay four years...
This is what our days are really like.
Each of our lives is so different, but we have so many things in common, too. Tag your Instagram photos with #facesofcare to show the real people who are supporting so many others.
On Facebook? Us, too
These private Facebook groups are a safe space for support and encouragement — or getting it off your chest.
This is a space for everyone who provides care, no matter who you are or where you are in your caregiving journey
People approach caregiving like it’s a personal issue. It’s not personal when all of us face the responsibility of providing support for the ill, disabled, and elderly people in our lives.
There’s no one type of caregiver.
Most of us don’t even identify with the term “caregiver,” so how do we find support? There’s no one demographic in caregiving, it touches everyone. We need organizations that will give us the support we need in the way we and our loved ones need.
It’s more than being a good friend.
The healthcare industry has shifted more and more of the responsibilities of keeping people alive and safe onto friends and family — and health aids with little training, support, or pay.
Everyone deserves support.
We don’t care how many hours you put in or how long you’ve been doing it. If supporting someone in your life is on your mind every day, you belong here.
This is a space for everyone providing care.
Lots of organizations have rules for who can be a part — or ways to make people like us feel unwelcome.
This is a community of people who aspire to be empathetic, generous, understanding, and patient — to the people we support, to each other, and to ourselves.
Join our newsletter
Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).
This isn't a roundup of articles; this is what's on her mind after deep discussions with a wide array of care workers, participating in communities of mutual aid, reactions to mainstream and academic publications, and personal reflections—from the profound to the profane.
We go way beyond tips and tricks. We're imagining a different world, based on what care workers are already living.
There are no grand solutions, but there are countless little ways to make our lives better.
By signing up for the newsletter, you're consenting to get email newsletters from us using a tool called Substack.
We don't sell or share our list with anyone.
I'm caring for my
I am part of
Community, not corporations
The Caregiver Space isn’t a front for a pharmaceutical company, a healthcare conglomerate, or the government. We’re a bunch of caregivers from all walks of life, coming together to support each other.
We can be totally honest about our experiences because this is a judgement-free-zone. Our experiences are all different, but we get it.
Not everyone has friends who understand or will even listen; that’s why we’re here.
We provide a safe and open space—at no cost—where you can be real about what it’s like to care for someone dealing with a serious disability or illness.
No matter what stage you are in your caregiver journey—whether you currently care for someone, are about to, or did it in the past—you’re welcome here.
Our community of caregivers is a place to ask questions, share experiences, get real answers, or just get things off your chest. Please do not use this space as a substitute for professional advice. We’re your friends, not your doctor.
Guidelines & Moderation
Everyone is entitled to their opinion. Remember there is another human being who is likely experiencing some pain on the other end of the computer. We are here to support each other, not make caregiving harder.
As a community that welcomes all forms of diversity, we encourage a multitude of voices and perspectives.
Terms & Conditions
The Caregiver Space, Inc. is a peer support community. The information on The Caregiver Space is for informational purposes only, and is not a substitute for legal advice, medical advice, diagnosis, or treatment. Please consult your healthcare provider with any questions regarding medication or treatment. The views expressed by authors, volunteers, and members of The Caregiver Space are their own and do not necessarily reflect the views of The Caregiver Space, Inc.
Your data, cookies & ads on the site
We use Google Adsense and Amazon Affiliates to offset a small portion of the costs of running this nonprofit. We use Google Analytics to keep track of our site traffic and Substack to manage our newsletter (we used to use MailChimp). Our forms are powered by Typeform and we use Hootsuite for our social media accounts. This website runs on WordPress using Elegant Themes and is hosted on Siteground.
The Caregiver Space, 31 West 21st Street, Suite 4, New York, NY 10010