Care Work Longreads
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The latest care work stories
One of the things I hear all the time is that people's friends and family just don't understand what they're going through as a caregiver. I also am told all the time how "only another caregiver can understand." The sad fact is, a lot of other caregivers don't...
As a health care provider and a person who has taken care of not one but two partners with cancer who passed away from their illness, the movie Patch Adams scares me. I don't want to run into that guy and his big huge clown nose and his clown shoes and the bike horn...
Supplemental Security Income — a cash assistance program whose beneficiaries also get Medicaid coverage — sharply limits the income and assets of those who receive it. Today, over eight million people receive S.S.I. benefits (not to be confused with Social Security...
On the freezer door in my kitchen, there’s an index card held in place with a bright red magnet. In bold, black letters, I’ve written an important reminder on it: “Make a ‘When I Die’ file.” I should point out that I’m not terminally ill, just highly organized. I was...
July 26, 2020, commemorates the 30th anniversary of the Americans with Disabilities Act, arguably the most broad-reaching civil rights legislation since the Civil Rights Act of 1964. For decades before the ADA, people with disabilities — all 61 million of us, who...
Deborah Danner was a 66-year-old Black woman with schizophrenia. In 2016, an NYPD officer shot her in her Bronx apartment while responding to her neighbor’s call that she had been behaving erratically. She did not survive. Chillingly, Danner wrote an essay four years...
Longreads for care work
The thing is, everyone is talking about caregiving. They just don’t use the term “caregiving.” They talk about cancer, dementia, MS, cerebral palsy, and the frailty that sometimes accompanies aging.
They talk about being overwhelmed, stressed out, burnt out, and pulled in a dozen directions at once.
Does it matter if you identify as a caregiver or not? Not really, but the mismatch in terminology makes it harder to find support.
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Our articles are written by other people providing care. We’re sharing our personal experiences: what worked, what didn’t, how we feel, and what happened.
Every situation is unique, so the advice we share may not always be relevant to you.
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Thoughts on care work from Cori, our director, that hit your inbox each Monday morning (more-or-less).
This isn't a roundup of articles; this is what's on her mind after deep discussions with a wide array of care workers, participating in communities of mutual aid, reactions to mainstream and academic publications, and personal reflections—from the profound to the profane.
We go way beyond tips and tricks. We're imagining a different world, based on what care workers are already living.
There are no grand solutions, but there are countless little ways to make our lives better.
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