Canada is long overdue for a national registry of drug company payments to doctors

Canada is long overdue for a national registry of drug company payments to doctors

The province of Ontario recently took a historic step for Canada by introducing legislation that would shine a light on interactions between drug companies and prescribers. The use of the term “historic” here is not hyperbole, since the extent of payments towards physicians in Canada has never been known. Other countries, such as the United States… (more…)

A family with an astonishing rate of Alzheimer’s disease may harbor a powerful new gene

A family with an astonishing rate of Alzheimer’s disease may harbor a powerful new gene

ELLIJAY, Ga. – Louise Lowman Lee remembers stories about her great-grandmother being put in a fenced area in the backyard, so she could wander safely. She watched her mother patiently care for her grandmother, who lost her reason, inhibitions, and ability to care for herself. Then Alzheimer’s disease gradually eroded the brain of her devoted mother,… (more…)

The cancer stories no one wants to hear

The cancer stories no one wants to hear

During the 11 months when my husband, Ahmad, was dying of bladder cancer, few people wanted to hear how he was truly doing. They wanted to hear about hope, courage, and positivity, not about how Ahmad was unlikely to survive or his ruminations on how to live well while dying. I don’t blame them. Before I… (more…)

After losing a son to opioids, one dentist is fighting to change how his profession deals with addiction

After losing a son to opioids, one dentist is fighting to change how his profession deals with addiction

RICHMOND, Va. – On an unseasonably warm Friday morning in October, Dr. Omar Abubaker paced in front of a small lecture hall at Virginia Commonwealth University’s dental school. The 64-year-old oral surgeon, whose sharp gray suit matched his wavy hair, quipped about his caffeine habit as he gave his third-year students a crash course on the… (more…)

Some tax-exempt hospitals are lax at providing charity care and accountability

Some tax-exempt hospitals are lax at providing charity care and accountability

Garnishing wages. Turning over accounts to collection agents. Withholding services until an individual’s ability to pay is proven. These might seem like the practices of a big bank in the news for financial scandals. Instead, these tactics have surfaced at unexpected places: some of the country’s nonprofit, tax-exempt hospitals. A woman seeking treatment for leukemia at… (more…)

Writing through pain: A cancer survivor guides patients with pen and paper

Writing through pain: A cancer survivor guides patients with pen and paper

Would you be interested in participating in a writing group on The Caregiver Space? We’ve had The Page Listens since the beginning, but we’d like to organize a group that discusses the process together.


In 2013, Lynn Scozzari was staring at a photo of a naked woman seated on a rock, her arms thrust open to a valley below. Scozzari herself was seated at a table with fellow cancer patients and survivors in a conference room at Scripps Green Hospital in La Jolla, Calif. They were part of a writing… (more…)

Glen Campbell’s doctor discusses his struggle with Alzheimer’s

Glen Campbell’s doctor discusses his struggle with Alzheimer’s

Fans ‘didn’t care if he messed up’: Glen Campbell’s doctor discusses his struggle with Alzheimer’s

Glen Campbell’s decades-long musical career came to an end Tuesday, when the 81-year-old country music superstar died after a six-year struggle with Alzheimer’s disease. He leaves behind a sprawling songbook and one candid documentary, 2014’s “Glen Campbell … I’ll Be Me,” which follows the singer as he deals with his diagnosis and embarks upon a farewell… (more…)

Physicians need to openly discuss medical mistakes and near misses

Physicians need to openly discuss medical mistakes and near misses

Like many surgical problems, compartment syndrome must be recognized rapidly. Failing to do so may lead to a patient’s losing function in a limb, losing the limb altogether, and, in extreme cases, dying. A physician-in-training I work with missed it. Her error made me realize that medicine is suffering from its own largely unrecognized compartment syndrome.… (more…)

‘Everybody knows somebody’: This state is a laboratory for the future of Alzheimer’s in America

‘Everybody knows somebody’: This state is a laboratory for the future of Alzheimer’s in America

North Dakota’s sparse geography has long made it a natural frontier: Pioneers here pushed the boundaries of westward expansion, then agriculture, and recently domestic oil drilling. Now the state finds itself on the leading edge of a new boom that it never would have chosen: Alzheimer’s disease. Cases are climbing across the United States, and especially… (more…)

My daughter is fighting a rare disease. A ‘streamlined’ FDA won’t help her

My daughter is fighting a rare disease. A ‘streamlined’ FDA won’t help her

My 4-year-old daughter, Elle, is in the fight of her life. Her older sister, Milla, lost her fight last November. Their opponent? Batten disease, a rare, fast-moving, and fatal condition that destroys the central nervous system’s ability to function. Elle has a chance to help manage, or maybe even beat, her disease that Milla didn’t have:… (more…)

Don’t write us off: People with dementia press for more rights – and respect

Don’t write us off: People with dementia press for more rights – and respect

Ten months ago, Peter Mittler stood before a global audience of Alzheimer’s disease researchers and advocates and decried the indignities that people with dementia undergo. He knows the subject intimately: Mittler, an 86-year-old British psychologist, was diagnosed with mild Alzheimer’s in 2006. “Everybody thinks that we are just a medical problem,” Mittler told his audience. “People… (more…)