Writing through pain: A cancer survivor guides patients with pen and paper

Writing through pain: A cancer survivor guides patients with pen and paper

Would you be interested in participating in a writing group on The Caregiver Space? We’ve had The Page Listens since the beginning, but we’d like to organize a group that discusses the process together.


In 2013, Lynn Scozzari was staring at a photo of a naked woman seated on a rock, her arms thrust open to a valley below. Scozzari herself was seated at a table with fellow cancer patients and survivors in a conference room at Scripps Green Hospital in La Jolla, Calif. They were part of a writing… (more…)

Glen Campbell’s doctor discusses his struggle with Alzheimer’s

Glen Campbell’s doctor discusses his struggle with Alzheimer’s

Fans ‘didn’t care if he messed up’: Glen Campbell’s doctor discusses his struggle with Alzheimer’s

Glen Campbell’s decades-long musical career came to an end Tuesday, when the 81-year-old country music superstar died after a six-year struggle with Alzheimer’s disease. He leaves behind a sprawling songbook and one candid documentary, 2014’s “Glen Campbell … I’ll Be Me,” which follows the singer as he deals with his diagnosis and embarks upon a farewell… (more…)

Physicians need to openly discuss medical mistakes and near misses

Physicians need to openly discuss medical mistakes and near misses

<blockquote class=”repubhubembed”><p class=”rhexcerpt”>Like many surgical problems, compartment syndrome must be recognized rapidly. Failing to do so may lead to a patient’s losing function in a limb, losing the limb altogether, and, in extreme cases, dying. A physician-in-training I work with missed it. Her error made me realize that medicine is suffering from its own largely unrecognized compartment syndrome.…<!–more–></p><style scoped>.repubhubembed{display:none;}</style></blockquote>
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‘Everybody knows somebody’: This state is a laboratory for the future of Alzheimer’s in America

‘Everybody knows somebody’: This state is a laboratory for the future of Alzheimer’s in America

North Dakota’s sparse geography has long made it a natural frontier: Pioneers here pushed the boundaries of westward expansion, then agriculture, and recently domestic oil drilling. Now the state finds itself on the leading edge of a new boom that it never would have chosen: Alzheimer’s disease. Cases are climbing across the United States, and especially… (more…)

My daughter is fighting a rare disease. A ‘streamlined’ FDA won’t help her

My daughter is fighting a rare disease. A ‘streamlined’ FDA won’t help her

My 4-year-old daughter, Elle, is in the fight of her life. Her older sister, Milla, lost her fight last November. Their opponent? Batten disease, a rare, fast-moving, and fatal condition that destroys the central nervous system’s ability to function. Elle has a chance to help manage, or maybe even beat, her disease that Milla didn’t have:… (more…)

Don’t write us off: People with dementia press for more rights – and respect

Don’t write us off: People with dementia press for more rights – and respect

Ten months ago, Peter Mittler stood before a global audience of Alzheimer’s disease researchers and advocates and decried the indignities that people with dementia undergo. He knows the subject intimately: Mittler, an 86-year-old British psychologist, was diagnosed with mild Alzheimer’s in 2006. “Everybody thinks that we are just a medical problem,” Mittler told his audience. “People… (more…)