Mention the word “caregiver” and what is the first thought that comes to mind? Older? Exceptional? Isolated and disconnected? Homebound and unemployed? Each of these stereotypes about care and caregivers is becoming increasingly outdated for the approximately 45 million people in the United States and 6.5 million people in the UK who’ve provided informal, unpaid care to a loved one in the last year, because family caregivers have already begun to transform how people care for one another.
By 2060, Americans 65 and older are expected to increase in number from 46 to 98 million, disrupting our current systems of managing care and all those impacted by care in ways that defy comprehension – including patients, providers, caregivers, families, economies and workplaces. Right now, caregivers don’t simply give care, they are also creators of dynamic communities of support and community-based care delivery systems. As agents of change and influence for those at the margins of society including the disabled, the chronically ill and the aged, informal (non-paid) caregivers are at the center of this nascent social revolution. But these innovations – born from love and connection – are largely overlooked.
Here are just some of the ways in which caregivers are the nexus of a growing ecosystem of care that includes government services, medical providers, neighborhoods, families, and non-profit organizations.
Donna Thomson began her career as an actor, director and teacher. But in 1988, when her son Nicholas was born with severe disabilities, Donna embarked on her second career as a disability activist, author, consultant and writer.
Donna is the Special Advisor for Caregiving at Tyze Personal Networks and is the International Advisor to the PLAN Institute for Caring Citizenship. She is the co-founder of Lifetime Networks Ottawa, a PLAN affiliate and is a member of the Cambridge University Capability Approach Network. Donna is also an instructor at the Advocacy School (Ottawa, Canada), teaching families how to employ best practice political advocacy tools when advocating for care. Donna holds degrees in Fine Art (Theatre), Education and Theatre in Education. Donna’s interest in new modes of social engagement for marginalised families led her to sit on numerous boards, such as the London International Festival of Theatre, Women for Women International Leadership Circle and Dovercourt Community Association. Donna has spoken on disability and family wellbeing extensively, including at the London School of Economics, the Skoll World Forum, and the International Centre for Evidence in Disability.