I am 71 years old and have been taking care of my 36 year old daughter who was born with Smith-Lemli-Opitz Syndrome since her birth. She can’t walk or talk and is only fed via g-tube feedings.
And for the last year my husband, who helped care for our daughter, needs help with bathing and dressing. He has CHF, COPD, Diabetes, Rheumatoid Arthritis and diabetic foot ulcers. He can still manage taking his medications including insulin.
I love them both so much and they are both very sweet and happy and that makes taking care of them possible but difficult.
We have caregivers that come into our home to help with my daughter but it is still just me getting up at night to change diapers and reposition her.
With COVID-19, I have cancelled the caregivers because I need to protect my husband and daughter.
Tired 71 year old caregiver